As most of you already know, 2011 was not the best year for my family! I am really looking forward to 2012 and hopeful god has much better things in store for us. Colt has been busy trying to learn to walk independently and he takes a few steps by himself and then gets scared. It's amazing to think about how well he is doing considering the hell he has been through. His doctors have said he can go out in public when it's not busy out and make sure he isn't around anyone who is sick or been sick recently. His new immune system has to grow and learn to fight off germs....it's a slow process. His doctors also stopped his steroids last week, which makes me excited and nervous all at the same time. The steroids helped keep his donor cells suppressed so they won't attack his body, but it is nice that he is sleeping better now that he isn't hyped up on steroids. So we are just taking it one day at a time and enjoying the little bit of freedom we have ;)
We also booked our trip o Aruba this week! My brother Tyler and soon to be SIL are getting married there April 28, 2012. Many people have asked if we are taking Colt and the answer is yes. Colts doctors have reassured me that Aruba is "clean" enough to take colt as long as we stay at the resort and sanitize everything (which I'm an expert at). They also recommended we fly first class(oh darn haha) and that colt wear a mask on the plane. We will Also have to keep colt in the shade and wear lots of sunscreen and protective clothing. I'm anxious about taking colt out of the country but very excited too.
Today chuck and myself went to visit with dr. Witz,a fertility doctor. I had major complications when giving birth to Colt (almost bled to death) so my OB highly recommended me not to carry anymore children. Then, there is the genetic mutation that chuck and I carry. Soooo we decided that a surrogate would be our best option and then dr witz's team of lab specialist would test the embryo for HLH....they would only transfer healthy embryos. We did not get the news we wanted to hear today....insurance will NOT cover anything! This means we are looking at atleast $50,000 and that's a lot of money!!!! Colt brings so much joy to my life I cannot imagine not having a sibling for him, so we have a lot if thinking to do. Chuck and I have thought about adoption, but just aren't sure if that's right for our family. With all that being said, thank to everyone who has supported us and prayed for us this past year. I know everything will work out and 2012 is going to be a great year!
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