A slideshow I put together of Colt's transplant journey

Clinic appt

Yesterday Colt and I went to TCH for his monthly clinic visits. They drew labs and we met with his doctor and nurse practitioner. They both were amazed at how well Colt is doing and loved seeing him walk all over the clinic. His labs were all wonderful, except his HGB was down a tad. They think his HGB is down because the medication he is on (bactrim) can cause counts to go down. To be extra cautious they ran some test to make sure it is the bactrim causing his HGB to be a little low. We should have the test back by next week. They reassured me it is common with BMT kids to have a lower than normal HGB level and if it gets below 10 they will give him a medication called Darbe to boost the level. His doctor also said they will start immunizations in June....scary thought since his 2 month immunizations "set off" his HLH, but they said they will monitor him closely and are confident he will do well. He continues to hold strong at 100% donor cells :) we discussed isolation restrictions and both the nurse practitioner and his BMT doctor have lifted most of his restrictions. His immune studies have all come back great and he no longer needs IVIG infusions. Of course it's common sense to stay away from sick people and large crowds and they know how crazy I am with hand sanitizer and disinfecting wipes. They also gave me the go ahead to return to work in august if I'm ready. Obviously Colt cannot be put in daycare, so that would mean we would have to hire a nanny to come to our home. Some days I'm really ready to go back to work, other days not so much.
We are very thankful Colt is doing so well and we hope he continues down this path!