Colt's 2nd birthday

It's been a while since I updated the blog, so here it goes... We celebrated Colts 2nd birthday on October 18th. We took him to Kemah on his actual birthday and then that weekend we had a party for him at jump n jungle. It was so nice to be able to celebrate with family and friends this year. Last year colt was still on isolation and could not be around many people. You truly do not realize how much the little things matter most in life, until they are taken away. My family appreciates spending time together much more after the challenges we have faced with colt. Colt's immune system is working so well and he is responding well to immunizations that we got the go ahead to enroll him in a Mother's Day out program. It has been a big adjustment for colt and myself. Colt is very attached to me and has some anxiety issues when I'm not around, but we are working through that. His teachers are very understanding and love colt so much. Ms. Amy always sends me pictures of colt to ease my mind and let me know he is ok and having fun at school. I couldn't have asked for a better teacher for colt :) As most of you know, colt is delayed in the speech area and is receiving therapy through ECI. He is making progress....he now says- momma, daddy, bye bye, ball, I did it, hi, go. I'm very aware that might not seem like much for a 2 year old to say, but doctors cannot say what kind of damage the chemo has done to colts brain. He received chemo from 14 weeks old till 10 months old and not to mention he was on high dose steroids for almost 18 months. I'm certain that colt will eventually catch up and be a talking machine. For now, I will keep working with him and signing with him. I believe children rise to the expectations that people give them. I heard back from Colt's donor last week and he told me how much he has been praying for our family and that donating his marrow for colt was a big part of his life. I will never be able to express how thankful I am for him giving colt the chance at a healthy life. Hopefully in the near future I can give y'all some more information on this wonderful young man, but for now we are respecting his privacy. Soooo a lot of people on Facebook are doing the 30 days of thankfulness ( write what you are thankful for each day in November) and I was going to jump on the bandwagon, but I realized no one wants me to go on and on about all the things I'm thankful for AND if colt has taught me Anything, it's that I wake up and thank god for everything I have EVERYDAY! Life is so precious and I try to make the best out of everyday. I definitely think I sometimes have parents survivorship guilt. When I constantly hear about HLH kids passing I sometimes feel guilty about posting pictures of how well colt is doing. And then on the other hand, I want to give other HLH families hope! So that's all for now. Thank you for your continued prayers for my sweet boy. He truly is a miracle and I know god has big things in store for him :)