Clinic Visit

We went to TCH today for Colt's clinic visit and blood work. His labs all look pretty good...they have been higher, but the nurse practicioner said one of the medications he is on (Bactrim) can cause his counts to be lower. He has been off his steroids for 3 weeks now and we have noticed that he is starting to get a rash on his head and face so we are going to try some topical cream to clear it up. If the cream doesnt work, we will have to put him back on steroids ...yuck! Steroids keep his immune system suppressed, which keeps his body from mounting an act agaisnt his donor cells and also keeps his donor cells from attacking his skin (GVHD). Colt is down to taking just one medication now- Bactrim, which he will continue to take until a year post transplant. I'm so happy he continues to take steps in the right direction! Just 6 short months ago I could have never imagined for my family to be heading in the direction toward some sense of normalcy. Since Colt was 14 weeks old we have been basically on isolation and not been able to do much except go to the hospital and have a few visitors over here and there. Although some of his isolation restrictions have been lifted, we still have to be very cautious, as it is still cold and flu season.

On another note, Colt has been walking all over the place! This is a huge developmental milestone for any one year old, but since Colt laid in a bed for 5months this is HUGE for him :) We are working on talking with him and using his words. He says mama, dada, bye, and TY TY (Uncle Tyler). I know with time he will be my little chatter box.

GO TEAM COLT!!!